Sparks lost her 16-year-old step sister Bryanna to sickle cell earlier this year. She remembers her as being a “vibrant,” happy teen. So seeing her struggle with this disease was hard, but it also inspired Sparks to help others.
Sparks says if a project like Generation S was around before Bryanna’s death, “she would have felt less alone,” and knew that there were people who understood her pain.
Sickle cell disease affects hundreds of thousands of people and most of them are Black and brown people.